The Makings of a Modern Epidemic Endometriosis Gender and Politics 1st Edition by Kate Seear 1409460827 9781409460824

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ISBN 10: 1409460827

ISBN 13: 9781409460824

Author: Kate Seear

Since its ’discovery’ some 150 years ago, thinking about endometriosis has changed. With current estimates identifying it as more common than breast and ovarian cancer, this chronic, incurable gynaecological condition has emerged as a ’modern epidemic’, distinctive in being perhaps the only global epidemic peculiar to women. This timely book addresses the scholarly neglect of endometriosis by the social sciences, offering a critical assessment of one of the world’s most common – and burdensome – health problems for women. Drawing on a range of theoretical perspectives, including science and technology studies, feminist theory and queer theory, The Makings of a Modern Epidemic explores the symbolic, discursive and material dimensions of the condition. It demonstrates how shifts in thinking about gender, the body, race, modernity and philosophies of health have shaped the epidemic, and produces a compelling account of endometriosis as a highly politicised and grossly neglected disease. Drawing upon rich empirical data, including in-depth interviews with women who have endometriosis and medical and self-help literature, this ground-breaking volume will appeal to scholars and students across the social sciences with interests in gender studies, science and technology studies and the sociology and anthropology of medicine, health and the body.

The Makings of a Modern Epidemic Endometriosis Gender and Politics 1st Table of contents:

Introduction: Towards Pastiche

What is Endometriosis?

Uncertainty, Mess, Complexity and Contest

Why Study Endometriosis?

Previous Research into Endometriosis

The Social Construction of Reality

Subjects, Objects and Politics

Research and Writing (Or, Performance and Politics)

How Should We Write about Endometriosis?

The Pinboard-Pastiche Method

The Focus of this Book

1 Crisis of the Modern: On Advocacy, Research and the Rise of Endometriosis

Binaries and Boundaries

The Power in/of Binaries

Disobeying Nature’s Rules

Serendipitous Findings

Towards a Non-realist Approach

1 Humans, Nonhumans, Nature and Culture

2 Chaos, Order, Modernity and Tradition

Conclusions

2 The Disease of Theories: On the Function of Medical Hypotheses

Processes of Deliberation

Pluralism, Fragmentation, Multiplicity

Endometriosis, Theory, Multiplicity and Mess

Endometriosis and Difference

The Disease Enigma

Evading Capture

Endometriosis is not a Disease at all

Endometriosis is a Set of Diseases

Conclusion

3 Standing up to the Beast: On Mystery and Mastery in the Endometriosis Self-help Literature

How Texts Relate to the World

Historical Perspectives on Self-help Literature

Enacting the Disease

Enacting Agency

Enacting Disease Theories

Keeping Up Appearances: Agency and Emotions

Agency, Risk-avoidance and Prevention

1 An Abundance of Risks

2 ‘Prepare the Best Nest’: Agency and the Maternal Self

3 Autonomy and the Avoidance of Risks

4 Controlling Risks: A Paradox?

Conclusion

4 The Typical Patient Profile: On Treatment and the Constitution of Subjects

The Question of the Subject

The Question of Matter

The Typical Patient Profile

The Treatment of Endometriosis

The Will to Pregnancy

The Demands of Time

Hormonal Therapies

Treatment and Non-compliance

Treatment, Typical Patients and the Epidemic

Conclusion

5 Sooks, Slobs and Monsters: On Responsibility, Self-care and Living with Endometriosis

Women, Endometriosis and ‘Taking Charge’

Responsibility, Freedom and Medical Power

Women, Gender and Citizenship

Becoming a ‘Responsible’ Subject

Managing the ‘Monstrous’ Self

Authenticity, Ontology and the Psychology of Self-care

Alice

Yolanda

Chelsea

Empowerment and Agency

Conclusion

Conclusion: Pinning Disease Down

Pinning Things Down

Back to the (Drawing) Board

Where to from Here?

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