Sickle Cell Disease An Educational Booklet for Parents Patients and the Community 1st editon by Adlette Inati Khoriaty

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Author: Adlette Inati-Khoriaty

This educational booklet is designed to provide a comprehensive yet accessible resource for understanding sickle cell disease (SCD). Tailored for parents, patients, and community members, it covers a broad range of topics essential for navigating the challenges associated with this genetic blood disorder.

Sickle Cell Disease An Educational Booklet for Parents Patients and the Community 1st Table of contents:

1. Foreword by the TIF President
2. Introduction
3. What causes sickle cell disease
4. Inheritance scenarios
5. Diagnosis of sickle cell disease
6. Types of sickle cell disease
7. Do all people with sickle cell disease have the same clinical manifestations and outcome?
8. Most frequent medical problems in sickle cell disease
9. Pain
10. Anaemia
11. Frequent infections
12. Body organ damage and failure
13. Other medical problems
14. Stroke
15. Acute chest syndrome
16. Acute splenic sequestration
17. Hand-Foot syndrome
18. Gallstones
19. Leg ulcers
20. Avascular necrosis
21. Kidney and bladder problems
22. Priapism and impotence
23. Stunted growth
24. Eye problems
25. Treatment
26. Regular health care maintenance
27. Infections
28. Pain
29. Stroke
30. Acute chest syndrome
31. Acute splenic sequestration
32. Hand-Foot syndrome
33. Gallstones
34. Leg ulcers
35. Avascular necrosis
36. Kidney and bladder problems
37. Priapism and impotence
38. Eye problems
39. Blood transfusion
40. New treatments
41. Special health issues
42. Teenagers
43. Adults
44. School/University needs
45. Pregnancy
46. Surgery
47. Outlook for patients with sickle cell disease
48. Prevention
49. Screening for the carrier state and the disease
50. Genetic counselling
51. Prenatal diagnosis
52. Pre-implantation genetic diagnosis
53. Avoidance of marriage among close relatives (consanguinity)
54. How can you as parents help in caring for your child?
55. Common laboratory tests
56. Frequently asked questions
57. Facts and myths

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Adlette Inati Khoriaty,Sickle,Cell Disease