Uncertain futures communication and culture in childhood cancer treatment 1st Edition by Ignasi Clemente 1118909712 9781118909713

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ISBN 10: 1118909712

ISBN 13: 9781118909713

Author: Ignasi Clemente

This book examines children and young people’s attempts to participate in conversations about their own treatment throughout uncertain cancer trajectories, including the events leading up to diagnosis, treatment, remission, relapse, and cure or death. Clearly and compellingly written, Clemente relies on a new multi-layered method to identify six cancer communication strategies Illustrates that communication is central to how children, parents, and healthcare professionals constitute, influence, and make sense of the social worlds they inhabit—or that they want to inhabit Provides ethnographic case studies of childhood cancer patients in Spain, using children’s own words Examines the challenges of how to talk to and how to encourage patients’ involvement in treatment discussions   In his critique of the “telling” versus “not telling” debates, Clemente argues that communication should be adjusted to the children’s own needs, and that children’s own questions can indicate how much or little they want to be involved Uncertain Futures is the winner of the 15th Annual Modest Reixach Prize

Uncertain futures communication and culture in childhood cancer treatment 1st Table of contents:

1 Children: Contributions to Communication and Illness

Alternatives to Speaking

Problematizing Participation

Uncertainty and the Practice of Optimism

Ethnography and Conversation Analysis

Plan of the Book

2 A Linguistic Anthropologist in a Pediatric Cancer Unit

Culture and Disclosure Practices in Catalonia

Fieldwork with Children

Contexts of Children’s Questions

Investigating Avoidance

Multiple Ways of Talking about Cancer

3 Living and Dealing with Cancer

Focusing on Treatment

Guessing

Being Together

Talking Privately

Uncertainties of Treatment

4 Co-constructing Uncertainty

Questions and Answers

Uncertainty and the Topic of Questions

Contingent Answers

Contingent Questions

Uncertainty and the Action of Questions

Answers that Lead to Subsequent Actions

Avoiding Answers and Avoiding Silence

Stepping into the Uncertain Future One Turn at a Time

5 Engaging in Communication at Catalonia Hospital

Learning the Diagnosis

L’entrevista (The Treatment Interview)

“And When Will I Be Completely Cured?”

Six Communication Strategies

6 Patient Pressure and Medical Authority

Everyday Life in Treatment

“How Many Chemos Do I Have Left?”

Seeking Answers Without Challenging Medical Authority

7 The Limits of Optimism at the End of Treatment

Remission

Relapse

Negotiating Death

“Is the Day of the Autotransplant Going to Be Delayed?”

Optimistic Collusion

8 Conclusion

Appendix A: Profiles of Patients

Children (ages 3–6)

Young people (ages 11–18)

Appendix B: Transcription Conventions

1. Temporal and Sequential Relationships

2. Aspects of Speech Delivery, including aspects of Intonation

3. Other Markings

4. Crying (from Hepburn (2004))

References

Index

End User License Agreement

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